ADVOCACY
Make the voices of people living with ALS part of the conversations that shape care, research, and policy.
Strength is found in standing together.
ALS messed with the wrong flock. We're bringing people together through real stories, advocacy, education, and action.

FlockALS started with a simple idea: life's harder with ALS, but we don't have to do it alone.
Strength is found in standing together.— THE FLOCKALS SPIRIT
I'm a husband, dad, nurse, healthcare IT professional, and someone living with ALS. Since my diagnosis in 2024, I've seen firsthand just how much this disease changes daily life — and how much the right people can change the experience.
FlockALS is my way of bringing those people together: families, friends, advocates, clinicians, and anyone who wants to make life with ALS a little less isolating and a lot more visible.
There are tough days. There is still plenty of humor. And there's a whole flock ready to show up.
We believe meaningful change happens when people listen, learn, connect, and show up for each other.
Make the voices of people living with ALS part of the conversations that shape care, research, and policy.
Bring lived experience into classrooms, clinical training, and community spaces so future professionals see the whole person.
Help families, caregivers, and supporters feel seen, find community, and discover helpful resources.
Rally around practical needs, awareness efforts, and organizations improving life with ALS.
Whether you're newly navigating ALS or looking for ways to help, you're welcome here.
Clear, reliable information about ALS, symptoms, care, and support.
ALS Association resourcesFind advocacy opportunities, support, and ways to shape the future of ALS.
Explore I AM ALSDiscover programs supporting equipment needs, quality of life, and independence.
Explore Team GleasonThese are independent organizations linked for general information. FlockALS is not a medical provider or a substitute for professional advice.
Big gestures are great. But an introduction, a conversation, a shared story, or a simple act of kindness can go a long way.
Let's connectHelp more people understand the real lives behind ALS.
Connect with us about ALS panels, talks, or educational events.
Support awareness through FlockALS gear and community campaigns.
Visit the FlockALS shop ↗Have an idea, a question, or an opportunity to collaborate? We'd love to hear from you.
Questions, educational panels, community events, and collaborations welcome.